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When we arrived, she was back to not being herself and even worse. Her fever crept over 100 degrees and all she wanted to do was sleep. We immediately took her into the nearest emergency room where they hooked her up to an IV, told us that she indeed did not have a double ear infection, but barely a single.
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Not only was the infection confusing, they believed she had pneumonia, which was a surprise to us. They told us she could have picked up some sort of horrible virus since we were moving locations so often. The doctors discovered that the dosage of her antibiotics was completely off, wrote us a new one and recommended we admit her to continue to hydrate her.
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We informed them that we are heading to Arizona next where we had more family and would take her in there since we had outside support for our son. After a long night, we continued on. After a few days of this new medication and a huge amount of hydration, she again gave us hope that her health was coming back to normal.
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We celebrated my 30th birthday and right after, her health started to decline yet again. The biggest difference this time was her eye. She had a strange black eye on her eye socket, not like the typical ‘shiner’ that mobile babies could get. We thought that perhaps she had laid her face on her IV with the splint on it back in New Mexico.
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Her fever came back, her lack of drinking any fluids had us beyond worried, her black eye and her complete lethargic behavior told us to take her back in. Our son Kaden stayed with family while we took her into Phoenix Children’s Hospital, one of the extension campuses. We hooked her up for another IV, had blood work is drawn and a belly X-ray.
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The doctors and nurses that we saw were stumped at her behavior and her symptoms. Bloodwork showed that she was anemic. One doctor noticed that her belly was enlarged and slightly hard to the touch. As her parents, we knew her as the squishy baby. We even said that she had a Buddha's belly, so when we heard this we were surprised that it could mean something.
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One of the nurses noticed that she had thrush, which was a surprise to me because she was a bottle baby. The doctor that read the X-ray said she did not see any masses, but her liver looked a little enlarged and sent us down to the main campus to see a specialist. That ambulance ride was the only sleep that she got in days where she was not laying on my chest.
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After being admitted, another team of doctors told us that they are stumped. That nothing is jumping out at them. They were thinking that something was going on with her liver, perhaps liver disease. The doctor ordered a complete CT scan so we could hopefully find some answers.
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At this point, John and I were staying in a hospital room and trading off who would drive 45 minutes to go spend a few hours with our son and who would spend the night not sleeping and holding Millie so she would sleep. When we finally had our scan scheduled, waiting for the answers shot my nerves through the roof.
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The doctor came in, much earlier than we had expected, which usually did not result in positive news. He sat down with us, looked at us and said, ‘I’m not waiting for the definitive radiologist report. That could take quite some time since this is a holiday weekend. I have good news and I have bad news. We finally figured out what has been making your daughter so miserable. She has cancer, we believe it would be stage 4 neuroblastoma. The good news is prognosis can be good, about 80%.
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